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We believe the most fruitful way to move beyond the current dynamic is to support a new organization with a mission to promote integrated, comprehensive approaches to care that enhance the overall health and well-being of persons with sponsored and convened a national group of health care and advocacy professionals to establish a nonprofit organization charged with making sure the new ideas about appropriate care are known and implemented across the country.

This organization, Accord Alliance, opened its doors in March, 2008, and will continue to lead national efforts to improve -related health care and outcomes.

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However, the data and documentation contained within are not to be redistributed or made available from any other location than without the express written permission of At present, the new standard of care exists as little more than ideals on paper, thus falling short of its aim to improve the lives of people with is considerably hamstrung in being able to fulfill this role.Although it has been very successful in recent years in creating collaborative relationships (our participation in the Intersex Consensus Group and authorship of the influential and many of our collaborators, this has been extraordinarily frustrating and has hindered our ability to champion and move forward in this important work.From these scrappy, brave, and confrontational beginnings, evolved into an important resource for clinicians, parents, and affected individuals who require basic information about disorders of sex development (DSDs) and for how to improve the health care and overall well-being of people with But as wonderful and historic as these changes are, no institution has fully implemented them.

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There are no mechanisms are in place to foster implementation nor to evaluate to what extent these changes improve health care experiences and outcomes for persons and families affected by ’s dilemma: we finally have consensus on improvements to care for which we have advocated for so long, but we lack a consistent way to implement, monitor, and evaluate them.Our Mission: The Intersex Society of North America (ISNA) is devoted to systemic change to end shame, secrecy, and unwanted genital surgeries for people born with an anatomy that someone decided is not standard for male or female.